Vol. IV, Issue #41
Meeting
Report
The meeting was a sharing
session of
questions, answers and suggestions. Some of the newcomers were
reassured
by long-time members that their experiences and frustration are
familiar to
many of us. It was also stated that people often figure out they
have CFS
and/or FM before the doctors finally make a diagnosis. Coming to
the
meetings can offer support while the diagnostic process
continues. If the
ultimate diagnosis proves to be something else, you have lost
nothing.
For those of you who cannot attend the meetings, we hope this
newsletter
helps. You are not alone.
Some members expressed an
interest in
meeting in July and August. We have made room arrangements for
the third
Sunday of those months (2-4PM). In July, the informal gathering
will be
held in the Executive Dining Room and in August it will be held in the
regular
downstairs meeting room. These will be informal meetings.
Some of
the co-leaders will not be in attendance, but Social Director Frank
Kawa
expects to be there. You are welcome to come and spend time with
your CFS
friends.
________________________________________________________________________________
*****************************************************
Just For Fun
Social Director, Frank
Kawa, has set a date (Wednesday July 11th) for a luncheon at
The Seville Diner 289 Broadway in Westwood. The group
will be
there from 1:30 PM until about 3 PM. Just show up. If you
have any
questions or wish to let Frank know you are coming, you can call
Frank.
He can be reached at 201-768-4111. You do not need to contact
Frank to
attend.
*****************************************************
FYI
COMING THIS FALL *
SAVE THE DATE!
New
and
Co-host
NJCFSA Fall 2007
Conference
at the
October
7, 2007
11:30
am – 4:30 pm
Featuring:
Richard
Podell, MD
Susan
Levine, MD
Malcolm
Schwartz, MD, as Moderator
Exhibits, Buffet
Lunch, Presentations, Awards Ceremony,
Question and Answer
Panel
For
additional conference information (e.g.,
general information, speaker bios, CME credits, and registration
information),
check our website www.njcfsa.org.
At the end of this
newsletter, you will
find information about sponsorships and exhibiting at the conference.
In The News
http://www.offerutah.org/cfsfmsnews.htm
STUDY
FOR FIBROMYALGIA PATIENTS—
Dr.
Lucinda Bateman is actively seeking fibromyalgia
patients, ages 18-70, to participate in clinical research studies of
three
investigational drugs for the treatment of Fibromyalgia. If you
are interested,
call Dr. Bateman’s office (801-359-7400) and talk to Ali Allen, RN,
research
coordinator, or others on the research team, to learn more about the
drug
studies currently underway. Qualified participants receive
study-related
physician visits, lab evaluations, and the investigational medication
at no
cost.
On
June 21, 2007, Pfizer's drug Lyrica became the first drug ever to achieve an
FDA
"indication" for FMS. It is the beginning of a number of drugs
racing to the market to help with FM symptoms.
*Editor’s
Note: If you
think you
might be interested, you might want to call to see if the study can be
done
long distance. Dr. Bateman is located in
Next Meeting
Informal gatherings will be
held in July
and August. Frank Kawa expects be there to meet those who wish to
attend. No programs will be planned. Come and share some
time with
people who also have CFS and/or FM.
The next formal meeting will
be Sunday
September 16th at
This newsletter is
intended for CFS patients in the area of
this support group. The purpose is to share information and
support. If you have questions about meetings please contact: Pat
LaRosa
at pat@larosas.net, Nancy Visocki at ngv.njcfsa@verizon.net, Judy Machacek at judymachek@msn.com or Frank Kawa at
201-768-4111.
Conference
Exhibitors
& Sponsors
If you have a business or
know someone
who might be interested in being a sponsor or exhibiting at the
upcoming
conference, please share this information with them. Contact us
if you
have any questions.
NEW
PRESENTS
A CONFERENCE FOR
PHYSICIANS AND PATIENTS
SUNDAY,
OCTOBER 7, 2007
SHERATON
CONFERENCE CENTER EATONTOWN, NEW
11:30AM
– 4:30PM
EXHIBITOR
INFORMATION (please print):
Agency/Company:
___________________________________
Contact
person:
___________________________________
Address:
___________________________________
___________________________________
Email:
___________________________________
Phone:
___________________________________
Exhibitor
Fee: $150
Please
enclose this form, and make check payable to: “NJCFSA,
Inc.”
Mail to:
Payment must be received by September 28, 2007
Instructions
for Exhibitors:
Exhibitor
fee includes lunch for 2 exhibitors.
Exhibits
will be set up in the conference room lobby, along with buffet lunch.
Exhibitors
should begin set up at 10:00am.
Registration,
lunch and the exhibitor area opens at 11:30am for conference attendees.
Conference
attendees will visit the exhibitor area again during a 2:30pm break.
The
conference ends at 4:30pm.
Exhibits
must be taken down by 5:30pm.
BY
FRIDAY, SEPTEMBER 21, 2007: Please send a short
description of your company’s products or services, as a list of
exhibitors
(and such description) will be included in the registration
booklet. Also
provide a contact name, address and phone number so that we can direct
inquiries to you. Email to: nvisocki@verizon.net.
For
a copy of the conference brochure, please visit our website at www.njcfsa.org.
Thank you
for your interest in NJCFSA. We look
forward to your participation!
Eileen
Holderman, Conference Chair (646-567-8125)
Sponsors
A booklet of sponsors will
be distributed
to conference attendees. The donation price is $100 donation for
a full
page, and $50 donation for a half page. The sponsor can
provide
text to be printed. A business card can be supplied, but will not
necessarily be reproduced as such. The data will be included.