Welcome to NJCFSA
We are patients and families with Chronic Fatigue Syndrome and we are here to support, inform and help you to deal with this serious illness. Follow the links below for quick answers to Frequently Ask Questions, or scroll down for recent news items featuring NJCFSA and developments in the CFS community. Contact information can be found at the bottom of this page. You can also explore our site using the navigation pane at left. Please show your support for what we do by joining NJCFSA now. Fill out and send in a membership form today.
Call Our Helpline number 1-888-835-3677during business hours
NJCFSA Needs Your Support - Donate Now!
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CFS News Flash - Latest Breaking News:
- Fall 2010 Conference October 17th in Eatontown, NJ:
Dr. Judy Mikovits of the Whittemore Peterson Institute to Speak on XMRV Research Progress. Click HERE for Conference Program or HERE for Brochure. Registration form and instructions are in the brochure. Continuing Medical Education credits are available through the Monmouth Medical Center.
- 2010 MEDICAL STUDENT SCHOLARSHIP Application is now available for download HERE. Applications are due August 21, 2010.
More information about the NJCFSA Medical Student Scholarship program and how you can support it can be found HERE.
- NJ Senate Resolution (SR) 20 Passes Unopposed
A resolution encouraging the establishment of the NeuroEndocrineImmune (NEI) Center™, the first research center in the state of New Jersey dedicated to understanding and treating chronic neuroendocrineimmune (NEI) illnesses which includes ME/CFS and Fibromyalgia, was voted on and passed June 10th. To be based in Newark, New Jersey, the NEI Center™ is a community patient-driven project of P.A.N.D.O.R.A, (Patient Alliance for Neuroendocrineimmune Disorders Organization for Research & Advocacy, Inc) in partnership with the Lanford Foundation-Lifelyme™, Inc.
Visit the NEI Center™ web site at www.neicenter.com
XMRV: Summary of New Research Linking XMRV Virus and CFS
National Institute of Allergy and Infectious Diseases (NIAID)
Communications on XMRV Research
with NJCFSA Trustee Emeritus Mary Ellen McNamara Here
Dr. Bell Calls for XMRV Research Funding Support:
Dr. David Bell of Lyndonville, NY is a pioneering clinician in the treatment of Pediatric CFIDS/ME, served as chair of the federal CFS Advisory Committee, and has spoken at NJCFSA Medical Conferences. His statement urging the CFS community to support the XMRV research at the Whittemore Peterson Institute can be read here:
New Jersey Governor Chris Christie Proclaims May 2010 as Chronic Fatigue Syndrome Awareness Month
NJCFSA Opposes Reclassification of CFS/ME by APA:
The American Psychiatric Association proposes to change the classification of CFS/ME to a Somatoform Disorder in the publication of the fifth edition of the Diagnostic and Statistical Manual of Mental Disorders (DSM-5) in May 2013. Click HERE for the text of NJCFSA's reply.
The Massachusetts CFIDS/ME & FM Association announces the first of a new series of free educational forums. ANTHONY KOMAROFF, M.D., will speak on "The Latest Research on Chronic Fatigue Syndrome" at 2 PM on April 24 at the Nangeroni Education Center of the Milton Hospital, Milton, MA, USA
For More Information go to their website
NJCFSA Trustee Dr. Kenneth Friedman Testifies at CFS Advisory Committee Meeting in Washington DC. View Video of His Testimony Here
Maddie Sterling wins 2009 NJCFSA Medical School
Scholarship. Read her essay here
New Jersey Assembly Resolution 202 urges Governor and memorializes Congress to encourage establishment of research center in New Jersey dedicated to chronic neuroendocrine immune disorders.
Click here for a copy.
Results of the2008 May Gala Benefit
NJCFSA has joined the H&R Block Non-Profit Program. Click on the banner below to find out how to help raise money for NJCFSA.
Barbara Comerford, NJCFSA member and former trustee, testifies before CFSAC
A copy of her testimony on educational accommodations for pediatric can be foundhere.
NJCFSA Trustee Dr. Kenneth Friedman grants part two of his interview series on ME/CFS Research:http://phoenix-cfs.org/InterviewFriedmanResearch.htm
Part Three of the interview is here: http://phoenix-cfs.org/IntFriedIIIAdv.html
New Research Study Seeks Young CFS Patients
Dr. Julian Stewart, director of theCenter for Pediatric Hypotension is looking for CFS patients aged 15 to 29 to join a study investigating Postural Tachycardia Syndrome (POTS).
New Pediatric Case Definition Published
A new case definition from the International Association for CFS/ME has been published in the Journal of CFS. Copies of the definition and articles on Pediatric CFS by NJCFSA Trustees Drs. Kenneth Friedman and Rosemary Underhill are available for viewing and printing on our Youth Corner page.
NJCFSA Fundraising Projects:
CFS Blue Ribbon Awareness Pins
1” high x ¾ “ wide
$3.00 each plus $2.50 Shipping and Handling
($.50 extra for S&H each additional pin purchased at that time)
Please send check made out to “NJCFSA, Inc.” to
NJCFSA – Blue Ribbon Pin
PO Box 477
Florham Park, NJ 07932
Use GoodSearch & Raise Funds for NJCFSA
You can help support the New Jersey Chronic Fatigue Syndrome Association by searching the Internet or shopping online with GoodSearch- www.goodsearch.com powered by Yahoo! Each search will result in a donation to NJCFSA! Visit the GoodSearch website for instructions on how to participate.
Seaside Park Travel will give NJCFSA 50% of its travel commissions for your trip
Book your leisure travel through Seaside Park Travel. Tell your friends, and you and they can get a great price and support NJCFSA at the same time! Just tell Seaside Travel that you want to support NJCFSA when you book your trip. They can handle all types of leisure travel including cruises, tours and hotel arrangements. Contact:
Seaside Park Travel
131 K Street
Seaside Park, NJ 08752-1319
A Consensus Manual for the Primary Care and Management of Chronic Fatigue Syndrome
Anyone may download an electronic copy of the Manual in Adobe Acrobat® Reader portable document format (PDF). To view the manual, Acrobat Reader software, available free from Adobe , is required. Download the CFS Manual (PDF file size 785K) at CFS Consensus Manual.pdf.
A translation of the manual in Japanese is now available here.
Physicians only: a limited number of printed copies are now available for physicians. Please call the NJCFSA Helpline at 888-835-3677.
Check out our newYouth Corner for Children, Adolescents and Young Adults.
Also read testimony from the CFS Advisory Committee meeting, January 10, 2005:
What NJCFSA Has Done For Children
"WRITE NOW:a Guide to Maintaining a Creative Spirit Through Writing"
by former NJCFSA trustee and long time member Susan Dion is now available for downloading onto your computer. Click here for all the information.
NJCFSA CONTACT INFORMATION
PO Box 477
Florham Park, NJ 07932Email Contact
: Peg Walk
NJCFSA Helpline: 888-835-3677 during business hours.
Thank you for visiting.
Disclaimer: The ideas expressed by each author, quoted individual or person posting on this web site are strictly his or her own. Some of the information contained herein is intended to help persons with CFIDS & FM make informed decisions about their health. However, The New Jersey Chronic Syndrome Association, Inc. and the creator of this web site do not dispense medical advice or endorse any specific medical hypothesis or product and assume no responsibility for any medical treatment or other activity undertaken by visitors to this web site. For medical advice please consult your healthcare provider. Furthermore this web site may contain numerous links to third party Web Sites and paid advertisements. The New Jersey Chronic Syndrome Association, Inc. and the creator of this web site do not control or endorse the content of third party Web Sites or products and services offered by advertisers. This information is provided as a service and not as a recommendation.
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