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May is ME/CFS Awareness Month

Posted on May 1, 2025 By James LaRosa
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NJME/CFSA Rosemary Underhill Medical Scholar Program 2025

Posted on April 1, 2025April 3, 2025 By James LaRosa
Apply here!

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Betty McConnell HS Scholarship Application

Posted on March 9, 2025March 9, 2025 By James LaRosa
Available Here

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January 2025

Posted on January 20, 2025 By James LaRosa

THANK YOU to all who supported NJME/CFSA during 2024. Donations are used to support the scholarships, printing, postage, and free support groups. Also, physician education is not free. We pay publication costs of research papers placed in medical journals. Donations are essential to our work.   

We are also currently seeking people who are interested in becoming board members. Please contact us at HelpDesk@njmecfsa.org or pcl.njmecfsa@ gmail.com.

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ME/CFS Patients Should Find Treatment at Long COVID Clinics

Posted on October 8, 2024 By James LaRosa

ME/CFS patients should be able to receive treatment at Long COVID clinics particularly those that are receiving federal funding. The National Academy of Medicine case definition of Long COVID is sufficiently broad so as to include most ME/CFS patients and a demonstration of prior COVID infection is not required.

ME/CFS patient eligibility for treatment is important to establish in view of the anticipated additional funding for Long COVID treatment clinics when the Senator Bernie Sanders’ Long COVID Moonshot legislation becomes law. Senator Sanders’ healthcare team is willing to assist ME/CFS patients should they experience difficulty receiving care at Long COVID Treatment Clinics.  ME/CFS patients who are denied treatment at a Long COVID Treatment Clinic should send a summary of their experience to  Kenneth.j.friedman@gmail.com for processing and eventual adjudication by Senator Sanders’ healthcare team.

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June 2024 Proclamation!

Posted on May 1, 2024May 1, 2024 By Pat
Advocacy, Breaking News

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About NJMECFSA

We are patients and families with ME/CFS. We are here to support, inform and help you to deal with this serious illness.

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